A year ago was one of the scariest times of my life. Rob and I had just found out the girls were diagnosed with twin to twin transfusion syndrome and we were in Cincinnati going through testing. Man, that day was the longest and most painful experiences. There was nothing to invasive completed, it was just alot of laying down on my back and I was pretty pregnant. We waited for what seemed like hours to hear the final verdict. They brought us into this cold conference room and started to speak what seemed like a complete foreign language. They then told us that initially they had thought we would be diagnosed as a stage 1 and not need any form of treatment. But, the echo on the girls proved otherwise and that we were a stage 4. Rob and I had to make a tough decision at that point. We could try amnio reductions or do the fetal laser surgery.
Rob and I decided that we wanted to go ahead with the fetal laser surgery. We wanted to correct and give the girls the best chance possible. This type of surgery came with a huge risk and we really weren't sure how the girls would handle the stress. I had so many fears. Fears about the girls futures, fears about waking up. But, we knew that this was the right decision.
After the surgery, we were told that it was indeed the right decision. I had over 40 shared vessels and that amnio reduction most likely would not have worked. The girls' hearts also were doing so much better. And, the doctors were very hopeful for their survival.
Now, here we are, a year later and I have two healthy babies crawling all around and driving me crazy =). At times, I do lose it and get so frustrated because the girls won't sleep. But, I have to step back and realize how lucky we are to have them. I truly feel they are miracle babies.
As for the sleeping. gosh, i don't know what the deal is. They did so awesome when they were separated. Now, not so much. I am sure it is because they are still sick and teething, but Rob and I are both dying. So, we decided that we will put them in different rooms. Rob is up moving a crib now and I almost started crying. I wanted them to share a room..they have always been in the same room. It's just sad. I feel like I have failed in some way. Rob has promised we can move them back once the sleeping gets better, so that makes me happy. Please keep your fingers crossed that we can move them back together soon!
I promise to post pictures soon!